Illustrative Reference profiles for a generic digital health care organisation, not official job descriptions. About this reference.

Ethical research with patients and care staff

Planning and running research with patients, carers, clinicians, and care staff safely and ethically, including informed consent, safeguarding, research with people in vulnerable circumstances, and knowing when formal ethics approval is needed.

Original to this reference.

Levels

1. Awareness

You can:

  • explain why research with patients and care staff needs informed consent, safeguarding, and care with personal data
  • follow the team's consent, safeguarding, and data handling procedures in research sessions
2. Working

You can:

  • plan research sessions that get informed consent and protect participants' wellbeing and privacy
  • adapt sessions for people who are unwell, distressed, or in vulnerable circumstances, and know when to stop
  • recognise and report safeguarding concerns that come up in research
3. Practitioner

You can:

  • judge when research needs formal ethics or research governance approval and prepare what it needs
  • plan safe research with people in vulnerable circumstances, such as children, people with dementia, and people in crisis
  • plan research in clinical settings without disrupting care, working with clinical leads and care staff
  • support researchers to look after their own wellbeing after distressing sessions
4. Expert

You can:

  • set the organisation's standards for ethical research with patients, carers, and care staff
  • assure research practice across teams and advise on high-risk research
  • represent research practice to ethics, safeguarding, and governance bodies

Closest ESCO skills

Contains ESCO v1.2.1 data (https://esco.ec.europa.eu/). © European Union. Reuse authorised under Commission Decision 2011/833/EU.

Role levels that expect this skill

Role levelRoleBandExpected level
Associate user researcherUser researcher4Awareness
Junior user researcherUser researcher5Working
User researcherUser researcher6Working
Senior user researcherUser researcher7Practitioner
Lead user researcherUser researcher8bPractitioner
Head of user researchUser researcher8cExpert